Category: Disability Rap

Campus Life

Navigating the college experience

As we begin the new year, many high school seniors are receiving college acceptance letters. For many people with disabilities, especially significant physical disabilities, selecting a college and then attending that college comes with added complexities. They are often faced with having to advocate for themselves and their access needs in a whole new way, while also discovering what their needs are as disabled young adults. And all this while going to classes and having the college experience.

For more on all this, we’re joined by two guests. Jessica Roeckl-Navazio is a senior at Sacramento State University, studying sociology. Gus Albertsen attended Santa Barbara City College and California State University at Monterey Bay, majoring in Environmental Science. He graduated in 2023.

Click here to listen to and read the transcript of the show.

The Kids Are Alright

Youth engagement and the future of disability advocacy

Each summer, California’s Youth Leadership Forum brings high school students with disabilities from across the state to Sacramento for a week of learning and fun. The students stay on campus at Sacramento State University, gaining a taste of college dorm life. Often, this is their first time away from their families and support systems. They learn about self-advocacy, independent living, and life after high school from mentors who themselves have disabilities. Our new co-host, Alexa Guerrero, has participated in YLF as a disabled mentor to the high school students for a number of years.

For more on the Youth Leadership Forum and disabled youth engagement more broadly, we’re joined by two guests. Matt Baker is the Project Manager for YLF at the California Committee on Employment of People with Disabilities. We’re also joined by Dani Anderson, Disability Access Manager for the Ventura County here in California.

Click here to listen to and read the transcript of the show.

Crip the Vote

How community advocacy advances voter accessibility in California

It’s November, and we just had a special election here in California. We’re spending today’s show talking about the voting process for people with disabilities, how voting is made accessible, and the importance of voting as a way to engage in the political process.

We’re joined by three guests. From right here in Nevada County, Corey O’Hayre is with us. Corey has been the Assistant Registrar of Voters for Nevada County since August 2023 and served as Acting Registrar of Voters from June to October of this year. Donna Johnston is also with us. Donna is the Registrar of Voters for Sutter County. She has served in county government since 1990 and has been the Sutter County Registrar of Voters since 2008.

And from outside of Sacramento, Peter Mendoza is with us. Peter is currently a Community Program Specialist at the Sacramento Regional Office of the California State Council on Developmental Disabilities. He is also a member of the Sutter County Voter Accessibility Advisory Committee.

Click here to listen to and read the transcript of the show.

Incoming Executive Director of CFILC, Lisa Hayes

From managed care to managing a statewide network of Independent Living Centers: a conversation with Lisa Hayes

Today, we’re joined by the incoming Executive Director of the California Foundation for Independent Living Centers, Lisa Hayes. Lisa has had a long career in health and disability policy, leadership, and advocacy. For the past 7 years, she has served as the Executive Director of Rolling Start, Inc., an independent living center in southern California. She also serves as an appointed commissioner of the California State Independent Living Council and a board member of the National Council on Independent Living. Prior to her service in the nonprofit sector, Lisa worked for more than two decades in healthcare operations and contracting.

The California Foundation for Independent Living Centers, or CFILC, is a membership organization comprised of twenty-four independent living centers across the state. CFILC’s mission is to increase the capacity of independent living centers to support community living and independence for Californians with disabilities by providing advocacy, training, and resources. Lisa will officially assume her role as CFILC Executive Director on November 3.

Click here to listen to and read the transcript of the show.

Celebrating 40 Years of FREED

Two past directors reflect on 40 years of FREED, where we’ve been, and where the IL movement is heading.

This month, FREED is celebrating our 40th anniversary. We were founded in 1985 through the efforts of people with disabilities in Nevada County and the Nevada County Committee on the Disabled. This was a natural outgrowth of the Independent Living Movement, which grew out of Berkeley in the 1970s. FREED was one of California’s first rural independent living centers.

To celebrate our 40th anniversary, we’re hosting a fun-filled night of music and storytelling at the Gold Miners Inn in downtown Grass Valley on Saturday, September 27, from 5 to 9 p.m.. More about that event later in the show.

Today, we’re joined by a very special roundtable of guests. Tony Sauer was the Executive Director of FREED from 1995 to 2001. He went on to be the Director of the California Department of Rehabilitation. Ana Acton is also with us. Ana started at FREED in 2004 as the Disability Community Advocate and then was Executive Director of FREED for 11 years. She then went on to lead the Independent Living division at the California Department of Rehabilitation. She’s now with the California Department of Aging. Our Co-host Carl Sigmond spoke with Tony and Ana on Monday.

Click here to listen to and read the transcript of the show.

35 Years On – Reflections on the Anniversary of the ADA

Highlights from our 2020 show on the fight that brought us the Americans with Disabilities Act and the fights that lie ahead.

[Editor’s Note: We aired this show on July 9, 2025 as a rebroadcast of our August 2020 show. One of our guests was Mark Fenicle, the Chair of FREED’s Board of Directors. We are sad to share the news that Mark passed away on August 1, 2025. The following is a statement from FREED’s Executive Director, Carly Pacheco: “Mark has been involved in Independent Living since his college days. He was a steadfast leader, passionate advocate, and dear friend to FREED. His dedication to our mission and our community was unwavering, and I will certainly miss his council and support both personally and for the organization. Mark knew the value of our work and reminded us regularly where we come from, both with critical direction and reminders, as well as hilarious stories from ‘the good old days.’”]

In this episode of Disability Rap, we are looking back to 2020 and the 30th anniversary of the ADA. We assembled a panel of guests from across town and across the country who joined us remotely in studio for a live radio show. The discussion was so remarkable, we are bringing you the highlights to celebrate the 35th anniversary of the ADA.

Our guests were FREED founding member Geeta Dardick, FREED board chair Mark Fenicle, Eddie Ytuarte from Pushing Limits Radio Collective and Ami Hyten who is now the director of the Lois Curtis Center in Topeka Kansas.

Reflecting on what life was like in the days before the ADA, and the struggles that brought the law to fruition, our guests shared both personal experiences and the historical reflections that place this important legislation in context. Their hopes for the current struggles and future of disability justice are as relevant now as they were five years ago.

Click here to listen to and read the transcript of the show.

Cuts Proposed to Medicare, Medicaid, and Disability Services

An update on the proposed cuts to healthcare and disability services at the State and Federal level

Last month, the US House of Representatives passed a budget reconciliation bill that proposes cutting over a trillion dollars in Federal health care spending. The program that would see the largest cuts is Medicaid, which provides health insurance to people with low income and people with disabilities. The Congressional Budget Office estimates that the bill, if passed into law, would cut over 800 billion dollars from Medicaid alone, resulting in nearly 11 million Americans losing Medicaid coverage. The bill also proposes cuts to the Affordable Care Act, SNAP, and to Medicare, which provides coverage to more than 61 million adults age 65 or older and almost 7 million people with disabilities under the age of 65.

Meanwhile, here in California, disability rights advocates have been flocking to Sacramento in recent weeks to push back on Governor Gavin Newsom’s proposed state budget, which includes massive cuts to the In-Home Supportive Services, or IHSS, program, as well as cuts to services for people with developmental disabilities. IHSS provides in-home care for people with disabilities and older adults in California.

Click here to listen to and read the transcript of the show.

Read More “Disability Rap – June 11, 2025”

Trauma-Informed Disability Acceptance & Workplace Accessibility

Trauma researcher and author Dr. Xenia Barnes on loving herself through a disability diagnosis

Today, we’re joined by Dr. Xenia Barnes. After a 20 year career in education, Xenia turned her attention to social justice work and trauma research, with a particular focus on how gun violence impacts individuals and communities. Then, in 2021, she was diagnosed with pulmonary fibrosis, a lung disease that makes it difficult for the body to absorb oxygen from the air. Her essay “The Invisible Battle: Navigating the Minefield of Workplace Accommodation” was included in the recently published book, “Triumph in the Trenches: Navigating Success for Black Professionals.”

Xenia Barnes is a researcher, a public speaker, and a life coach. She is the author of two books on navigating trauma: “Grieving to Heal: The Shadow Boarding Experience” and “The Recondition: A Guide to Loving Yourself Through the Trauma.” She has completed one PhD degree in Theology and is finishing up a second PhD degree in Advanced Human Behavior.

Click here to listen to and read the transcript of the show.

Exploring Late-diagnosed Autism

A discussion with Kristen Hovet, the host of The Other Autism podcast, about autism in adulthood

April is Autism Acceptance Month, and today we’re honoring that by spending the show talking about autism and specifically late-diagnosed autism. Autism is a broad umbrella for describing how some people think, feel, and act differently from what is considered typical or normal. We did a show in January on neurodivergence. Autism is a form of neurodivergence, and autism is a disability.

Autism manifests in each person differently, but common experiences of autistic people are finding socializing challenging and/or tiring, getting overwhelmed in loud or busy spaces, having intense interests that you keep coming back to, and preferring order and routine. Some people use repeated motions or actions to calm down their nervous system and/or express joy and happiness. Some autistic people hide – or mask – their emotions in order to fit in socially. This can sometimes lead to mental illness.

Click here to listen to and read the transcript of the show.

Read More “Disability Rap – April 9, 2025”

Biden Administration Official Responds to Medicaid Threats

Emily Voorde on flying while disabled and the current proposed cuts to Medicaid funding in Congress

Today, we are joined by Emily Voorde, a former Biden Administration official and a top staffer in the Pete Buttigieg Presidential campaign. We talk with Emily about the current threats to Medicaid funding that are working their way through Congress. We also hear first-hand about the challenges people with mobility disabilities and assistive devices face when flying commercially, and we get Emily’s response to a recent lawsuit challenging rules set by the Biden Administration that aimed to make air travel safer and easier for people with disabilities.

Click here to listen to and read the transcript of the show.

Read More “Disability Rap – March 12, 2025”